Describe one positive change you have made in your life.
As most Spoonies will know, chronic health issues often force us to make changes in order to maintain our functionality day-to-day. I’ve consistently adjusted my life to accommodate my disability in what feels like a never ending cycle of loss. When this cycle first started, I grieved a lot for the things I may never do or enjoy again.
Throughout the years, this viewpoint might have crippled my mental health if I hadn’t made one positive change: my perspective. It’s absolutely normal to grieve for the parts of your life and health you’ve lost, but I was interested in changing how I felt about those things. It sounds easy to someone who’s never had to do it, but it can be one of the most difficult aspects of chronic illness to manage.
When I was younger, in the immediate aftermath of 9/11, I’d heard that people late for work that morning, out sick, or otherwise kept from the Trade Center buildings due to unforseen circumstances, survived. This knowledge evolved into the idea that sometimes a moment of loss or negative circumstance can end up being positive in hindsight.
I try to remember that the change and loss I’ve undergone, due to my health or other circumstances, might be the thing that pushed my life in the best direction for me. There are an infinite number of ways to live life, and when I stop fighting the necessary changes I end up in situations better suited to who I am as a person. I can’t imagine another choice I’ve made that has had a more positive effect on me than holding that perspective.
