Daily writing prompt
What makes you nervous?
As a Spoonie, chronic illness isn’t who I am, but it affects every aspect of my life. My friends and family, career, pets, hobbies, thoughts, wants, and day-to-day are all changed because of the chronic illness I have. This means I miss out on some things that I wish I could do. More than that, I end up looking back on choices I made as a kid and as a healthy individual and think, “I could’ve done so much more, but I thought I had more time”.
I faced the possibility of dying young, at the age of 4, so I’ve always tried to take advantage of life, that’s not new. As a kid, I thought I’d have more time with my body working normally, so I rested more and said no to more things than I would choose to now. When I got sick in 2015, my first thought was how many times I should’ve said yes to an opportunity or invitation. In some ways, I was granted a second chance to experience more of life; I still have a lot of my functionality left, and I’m extremely lucky.
What makes me nervous, is waking up and looking back on my life and realizing I missed a chance to experience something. I try hard each day to make sure I’ve done everything I had the energy to do, but also while resting properly so I don’t lose more of my health. Finding that balance between rest and experience is stressful, and a lot of people with chronic illness deal with it. When I’m resting my body, though, I try to think “I’m resting now, so I can fully enjoy the next moment I have energy for”. Treating recuperation this way helps quiet the nervous ticking of the clock in my head, telling me I could be running out of time. The rest is learning to accept that there are just some things I can no longer do, but there’s still so much out there for me to experience. I’m not really missing out, just taking a different kind of tour of life. I’m always going to be nervous, but if I do my best to experience the present as much as possible I’m sure I’ll have fewer regrets.